Life is certainly never boring around here.
Baby Girl has been diagnosed with Epilepsy. We are probably going to do medication with her. She's had 9 events since March, and although all are short (longest has been 21/2 minutes), they are not precipitated by anything, and obviously fairly frequent.
Dad and I had talked about it the night before, how the appointment would be short, he would tell us yet again that they don't know why she's doing it but she's perfectly healthy and call them if anything changes. And the first part of the appointment went as planned. He observed her, she showed off her charm by trying to dismantle his blinds, and then giggling at him. He said her neurological development was perfect. And then he said, "But considering the unprecipitated nature of the events, I'm inclined to diagnose epilepsy and recommend medication". That wasn't in the script.
So once again, nothing has really changed but everything feels different. 10 years ago this could have been a devastating diagnosis, but now there are so many medications that have so few side effects, that this will be just a very small part of a normal life. Especially if everything goes by the script. Which occasionally does happen, even around here.
Meanwhile the older brothers are working through their feeling about this. The youngest 5 got all their Teeny Beanies and had synchronized seizures. "Ok, everyone has a seizure on 3" and then they would all shake their little animals. Then there were the unexpected ones. "Bear is walking along, thinking about playing ball when OH NO he has a SEIZURE!!"
It's saving us a bundle in play therapy.
Wednesday, August 12, 2009
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3 comments:
You wrote this just for me, didn't you?!
I am so sorry baby girl has epilepsy. That sucks. But, at least it's an answer...
Your kids are gorgeous!
What is going on in the world. A dear friend (our GPs wife) has THREE children who have been diagnosed with epilepsy. It just seems to surreal. The eldest, & the 2 youngest (there's 8 kids).
Sending you much much love as you all get your heads around it all...if that's even possible? Here's to grace for each day, & not looking too far ahead?
Love you!
I don't know if that made sense reading it back...I meant to say our GPs' family has some epilepsy issues, & his wife recently told me...
Gack! My brain doesn't work well by Friday.
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